On July 17, 2014, three days after her first birthday, Caroline was diagnosed with a Grade 1 Juvenile Pilocytic Astrocytoma (JPA). This is one of the more common types of pediatric central nervous system tumors, but unfortunately attached to her optic nerve which makes it inoperable.
About a year later, the 2% chance that this tumor metastasizes came true. Our family fell into the statistic and we fell hard. Unfortunately, Caroline’s tumor has a special mutation which caused it to spread. She now has 6 additional spots in her brain and several at the base of her spine.
SO – here we are today.
3 years and 7 months later, Caroline is a spunky, SUPER sweet 4-year old who has been through several variations of chemo treatment, brain surgery to remove half of the tumor, an immunotherapy trial and is now actively on a new Mek trial. Although Caroline has gone through a lot in her short life, she still has the energy and fun nature you would expect in any happy 4 year old. Caroline has an identical twin sister, Carson, and 6-year old brother, Stafford, who keep her spirits up especially on days she doesn’t feel well.
Because Caroline’s tumor is unique, we are still in the fight (and will remain in the fight) to understand what will make it stop growing. In the meantime, we keep our faith and hope that one day a cure will be found. Research is the most important part of finding a cure, so we are thankful for all who donate to this cause.